In 2009 we had our first child, a son. And in 2012 we had a second child, a daughter. I came very late to the game in having kids. I was unprepared for how having children would affect me, the complications that can arise from it and what it means to be a parent. In 2012 we almost lost our daughter to epilepsy. In 2014 our son was diagnosed with autism, and in 2015 I left my job.
I became immersed in the world of IEPs, EEGs and SPED. We have done many different therapies: speech, occupational, behavioral, talk. And we’re going to try somatic therapy and maybe vision therapy. I have spent years trying to help our kids adjust to the world around them. I joined the board of the Epilepsy Foundation and have been a part of the team that organizes The Walk to End Epilepsy for six years running.
I have read books, listened to podcasts, and attended storytelling events like The Moth. I have talked to moms and dads, teachers, doctors, and educators, all looking for advice and experience in the world of neurodiversity in Los Angeles. All of this has made me an activist and an advocate.
I have made some serious mistakes, followed bad advice, and just generally f*ck#d things up. (This is a podcast about children, not for them.)
Allow me to be your cautionary tale.
A canary in the coal mine, if you will, for the Los Angeles school system, public, charter, magnet, private and beyond.
I want to switch the focus to what our kids can do, not what they can’t. Obviously this is just one person’s experience. Hopefully you will find the comedy in my journey because otherwise we’ll all just be crying, right?
Different Learners Los Angeles. Launching December 2020. Listen on iTunes or wherever you find your podcasts.